Key Gaskell syndrome

Hi
   
I was wondering if you would be so kind and help me.
   
4 years ago we lost our cat to key-gaskell syndrome. At the time the disease was really rare and there was not the information or support out there to hep us. Even our vet could not help us.
   
We was then lucky to find a vet called jim who worked in newnham court vets in Maidstone that knew of the disease.
   
When we lost our cat we set up a website. In this year I have heard from 5 people already who has a cat who has been diagnosed with key-Gaskell. So it is not so rare now.
   
We have set up a Facebook page key-gaskell syndrome and I am writing to all veterinary and referral services to see if you can provide me with any information, treatments and causes you have on the disease so I can put it on the Facebook page.
   
I know first hand that this disease is not nice but the more information I can provide on the page it will help someone out there.
   
Thank you for taking your time reading my message and I hope you will be able to help me
   
Kind regards
   
Nina chapman